Sundays with Susan: caregiving thoughts

As I watched Dorian surge towards the eastern shore, having wrecked havoc on the Bahamas, it occurred to me there is a similarity to being a caregiver. I do not want to in any way to diminish what residents endured, but instead, want to draw some parallels.

Like a hurricane, a diagnosis seems to come […]

Sundays with Susan: Alzheimer’s Caregiving & Holiday

Labor Day is tomorrow and I can feel fall coming as the sun sets earlier and the days begin to cool down. The hint of fall is in the air as we treasure the last days of summer. Before I was a caregiver, I delighted in Labor Day as children returned to school, a familiar […]

Sundays with Susan; Caregiver Pain

Pain is a very subjective thing. Physical pain can be anywhere in the body, at various levels for individuals whether it real or psychosomatic, short of enduring, But it is recognized, validated, and treated by the medical community.

Caregiving pain is another story and is often overlooked, ignored or bypassed by doctors busy focusing on […]

Sundays with Susan: musing on Alzheimer's Caregicing

I’ve just gone through my summer closet and finally got rid of all the clothes I haven’t worn in years. Marie Kondo, Japan’s premier organizer and declutter, believes if it doesn’t spark joy, get rid of it. There are so many things that bog us down and make life more difficult – crowded closets, unpaid […]

Sundays with Susan; Musings on Alzheimer's Caregiving

Once we had wonderful plans: globe trotting, cruising, hiking, lounging on exotic beaches. Adventures for as far as we could see, for as long as we could go. Now those plans have been replaced by pill counting, doctor appointments, diaper changing, and overseeing his day.

My life, our life has been forever changed by a […]

LamentingThe Sometimes Funny Experineces of Caregiving

My friend recently had knee surgery and she has kept everyone hopping, as she oversees her care from the hospital bed placed squarely in her living room. At one point, I had a brief vision of the Queen overseeing her subjects with great delight. The poor daughter has put in 3 straight weeks of non-stop […]

Advocating for Caregiver Support

I’ve just returned from a wonderful and interesting few days in Washington where a group comprised of myself, a geriatric physician, a psychiatrist,, a health insurance executive, and a few other people met to discuss caregivers and their needs. We worked on putting together a plan/protocol to make sure caregivers get the help they need, […]

Sundays with Susan; Alzheimers Musings

Company has gone home after a hectic two week vacation filled with non-stop activity, laughs, boogie boarding, shopping and eating out. Now the house had returned to its usual quiet and it seems so strange and lonely. I remember a time when I was a full-time caregiver and prayed and hoped for quiet, but right […]

alzheimers caregivers

What makes caregiving a little easier? I got to thinking about that the other day and decided it was having APPITUDE. That’s a combination of attitude and aptitude. We all know the effect of attitude on everything we do in life, and in especially being a caregiver. Often with caregiving, it is difficult to maintain […]

Alzheimer's Caregivers & Respite Care

Just recently I returned from a vacation trip to Japan; something that had been on my bucket list for years. In fact so long, that it was on an original list my late-husband and I had made decades ago. I did not travel with him, obviously but, instead, with my granddaughter. We had a wonderful […]